Victoria
I’m going to guess I’m not the only one who sits around thinking “I want to volunteer more!” and then never gets around to it because there’s an album that needs designing, pictures that need editing, or whatever. Luckily, sometimes opportunities to give just fall right into your lap.
I got an email on Christmas from a girl named Victoria asking if I could take some pictures for a book she was writing with help from The Dream Factory, which is a non-profit that helps chronically and terminally sick kids achieve their dreams. Victoria is a sparkly person. I knew it as soon as I met her, she’s got this breathless enthusiasm that is totally contagious. A Lyme Disease carrying tick tried to tone down her sparkle, but I’m pretty sure it just made her shine even brighter. For the past five years, she’s dealt with the devastating effects of chronic Lyme Disease including seizures, daily I.V. antibiotics, and even a coma. She’s been chronicling her journey, as well as progress on the book on her blog and she asked for my help with creating a multimedia package to send to authors to write her foreword.
When I arrived at Victoria’s dorm, she started getting out the supplies for her daily I.V. antibiotics… boxes and boxes of stuff more fitting of a pharmacy than a dorm room. We put on our masks and she got to work, accessing a port by her clavicle. I asked if it hurt, and she said the area was numb from being punctured daily. The treatment takes an hour, and she did it every single day for about one full year. I’m happy to report that she is off the I.V. now! Yay Victoria!!!



Victoria wants to use her newfound expertise to go into the medical field and help others.


Now we wait.

Fortunately, a teen and a cellphone make the time go by quickly. ![]()

Once it’s over, she has to clear the line and then bandage the area.

We had planned to do a couple of different shoots, Victoria likes to jog and take walks with her friends, however one unfortunate symptom of Lyme Disease is that it causes pain receptors to misfire, basically telling your brain that something is hurting you when nothing really is. Because of this, Victoria was in a wheelchair for a couple of months but worked with a walker to maintain her strength. I’m happy to say Victoria is now not only out of the wheelchair, but is back to running! Woo hoo!!


Victoria wanted the potential foreword-writers to get to know her a little bit, beyond all the medical stuff. We gathered a few of her friends to play some games at a coffeehouse, and got some fun shots of Victoria in her natural state (aka laughing and having fun!) Many thanks to Spot Coffee for reserving a space for us on a very busy Saturday afternoon!





Victoria, I’m so glad that you contacted me to help you with this project… I cannot wait to see the finished book! Your bravery in the face of such adversity is completely admirable and it was such a pleasure to spend the day with you and your friends!


March 25th, 2010 at 12:00 pm
I love Victoria’s blog. I also admire her tenacity. Go, Vic!
March 26th, 2010 at 9:55 am
What a wonderful beginning to the finalization of her book! You have done a great job capturing her spirit!
March 26th, 2010 at 10:33 am
Megan, you did an excellent job! I was so impressed. I think everyone that has seen them liked the photos. Thanks again for your support and encouragement.
March 26th, 2010 at 6:07 pm
What an amazing story Victoria has! And so fun that you can be a part of it by documenting this for her.
March 29th, 2010 at 2:56 pm
Wow, what an inspiration! These pic’s are marvelous, I feel like I kind of know her know through this photo shoot, what a strong girl, I hope all goes smoothly with her project. What a compliment to your work as well
March 31st, 2010 at 2:37 am
Megan – I’ve been in touch with Victoria off and on by virtue of the fact that we’re both bloggers – she in the US and me in India… I must say your pics of her have really made her even more ‘real’ to me. Thank you – you have a gift!
Corinne
March 31st, 2010 at 3:10 pm
OK, now I’m crying! Beautiful spirit, touching story, wonderful pictures. You’re right… she does sparkle! Great job Megan and I wish Victoria all the best. Looks like a good collaboration.
April 19th, 2010 at 10:03 pm
So gorgeous on so many levels… and absolutely inspirational Victoria!!
May 21st, 2010 at 11:24 am
I went to high school with Victoria and read her blog when I have some spare time & came across this. Every single picture here is so…Victoria! I remember when I saw her in HS, she was always talking with someone and smiling or laughing, or else very busy with something she was working on. You did an incredible job capturing her, and I hope you both enjoyed the collaboration! Amazing on both sides!
May 25th, 2010 at 7:16 am
Such an inspiring story, thanks for sharing it! Victoria is truly bound for greatness!